We are a foundation created to help with the treatment, early discovery of and assistance with the care of TEF.
We work with the SickKids Hospital by providing funding for the floors dedicated to the care of TEF. We are also beginning an initiative to create a TEF pediatric surgeons registry in order to share information on research and experience in the field of TEF. This registry would allow for continued communication and advances in TEF treatment.
Our goal is to facilitate the early detection of TEF, which will ultimately lead to the proper care of TEF.
A foundation like ours is desperately needed. Families with outpatients suffering from TEF do not get nearly enough in the way of support from the hospitals and governments. If families do not have insurance, it is nearly impossible to cover the costs necessitated by the manageability of TEF. We are proud to help in every way we can to make life just a little bit easier for those living with TEF.
All donated funds are allocated to various areas of need. Portions go to the SickKids Hospital, the TEF Registry and an emergency fund for families in desperate need and to families affiliated with SickKids Hospital in need of assistance.
We have been personally affected by TEF by the loss of our daughter and every person we have met along our journey with Baby Tessa. The desire to help cure this disease and prevent any other families from losing their child is very real. We want to help. So we will.